Tag: COVID-19

• Physical and Emotional Pain Need Equal Attention in CMT and Polyneuropathy Communities

  

  Alongside research for treatments and cures, the CMT community needs to take a hard look at some elephants in the room — the most common and most remnediable pains and struggles impacting our quality of daily life.

  Dan

  May 10, 2023

  Awareness, People, Research, Supports

  COVID-19, Depression, exercise, Loneliness, Pain, Patricia Inácio, Quality of Life, Surgeon General, Young Lee

• New Canadian CMT Resources

  

  At some point I’d like to create a page of CMT resources in Canada just to present that all in one place. If you have anything or anyone you think should be on the list, please let me know! 📣

  Dan Knauss

  March 14, 2021

  News

  Canada, CMTA, COVID-19, MDC, NMD4C

• CMT and COVID-19

  

  The Inherited Neuropathy Consortium (INC) is asking for CMTers with a COVID diagnosis to take an anonymous questionnaire.

  Dan

  May 12, 2020

  Research

  COVID-19, genetics, Inherited Neuropathy Consortium, SARS-CoV2

• CMT, COVID-19, and Respiratory Health

  

  A few weekends ago, I listened to the HNF webinar on COVID-19 and CMT with Dr. John Bach of Rutgers University Medical School, a leader in the field of pulmonary rehabilitation, particularly for people with neuromuscular diseases. You can watch it and get a bunch of other materials now — for free — thanks to…

  Dan

  April 17, 2020

  Awareness, News

  BiPAP, Breathing, CMT and Respiratory Impairment, Coronavirus, COVID-19, CPAP, frog breathing, glossal pharyngeal breathing, HNF, John Bach, Lungs, Novel Coronavirus, Pulmonary Rehabilitation, Respiration, ventilators