Resources
Organizations, clinics, events, and practical supports, especially in Canada.
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Conference Videos Worth Watching
Session recordings from the CMTA’s 2022 CMT Patient and Research Summit, mostly on research, with a few on therapy and self-care. The events have passed.
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Walk4CMT is coming up on September 18!
I will be walking as far as I comfortably can in Muscular Dystrophy Canada’s Virtual Walk4CMT on Saturday, September 18 — which is somewhere north of 20km at which point the numbness setting it around 10km usually gets into a little more active pain, thanks of course to the effects of a relatively mild case…
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BILLYs
Thick sole, wide toe box, big ankle support, and the upper unzips to fold open for easy access and orthotic insertion. What’s not to like about BILLYs?
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New Canadian CMT Resources
At some point I’d like to create a page of CMT resources in Canada just to present that all in one place. If you have anything or anyone you think should be on the list, please let me know! 📣
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CMT Blogs of Note
A refreshed directory of independent CMT, neuromuscular, chronic-pain, and disability-justice blogs and newsletters, checked October 2026.
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CMT Research and Support Organizations in Canada that are Actually Canadian
The CMT group most Canadians find online is the US-based CMTA. Here are CMT research and support organizations and resources that are actually Canadian.