Here’s a blog focused specifically on research relating to Mitofusin 2 (MFN2) gene mutations which account for about 20% of CMT Type 2 cases: mitofusin2projectblog.wordpress.com. It’s backed by an Italian group for people with CMT2. I found them through their updates on current research.
Here’s a new group in Alberta for people with chronic pain: Chronic Pain Support & Connections. They’ve taken on the task of helping people with pre-existing and/or chronic conditions who are often excluded from mainstream insurance policies. They are working to find affordable premiums for insurance coverage (health, dental and/or life insurance) for persons with chronic conditions or pre-existing conditions in Alberta.