This is a list of independent blogs, newsletters, and podcasts about CMT and neighbouring conditions, disability justice, evidence-based medicine, and accessibility. Canadian voices are flagged 🇨🇦. For the annotated version, with notes on why each one is here and the voices that have gone quiet, see CMT Blogs of Note.
You can follow everything on this page in a feed reader or podcast app: give it the address of this page with ?opml at the end, or use the download link under each list.
CMT and Hereditary Neuropathy
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Living with Charcot-Marie-Tooth Disease
Isaiah Jacobs’s personal stories and practical tips from life with CMT, many useful for other chronic conditions.
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NMD4C
The Neuromuscular Disease Network for Canada, linking patients, clinicians, and researchers, with monthly news on research, trials, and training. 🇨🇦
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On My Own Two (Young Lee)
Young Lee’s column on living with CMT1A: ableism, empathy, and conversations with other CMT advocates.
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Rachel Daigle
A young woman’s life with CMT1A, chronic pain and a hip surgery that went wrong.
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Rare Mom
Iris Schultz, parent of a child with CMT4B3, on braces, insurance appeals, and how rare-disease research works.
Neighbouring Conditions
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Hello Lelu
Reporting and reflection centred on disabled and chronically ill people.
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Pain News Network
Independent, reader-supported news on chronic pain and pain policy, with columns by pain patients.
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Rarely Thriving
Dispatches from the messy reality of a neurodivergent, disabled mum.
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The Wheelchair Activist
Emma Vogelmann’s personal essays on spinal muscular atrophy, disability, power, love, and everyday life.
Disability Justice and Crip Writing
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AODA Alliance
David Lepofsky’s volunteer coalition tracking Ontario’s accessibility law and its enforcement. 🇨🇦
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BIOPOLITICAL PHILOSOPHY
Shelley Tremain’s critical philosophy of disability, home of the Dialogues on Disability interviews. 🇨🇦
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Cranky Granky
Eaton Hamilton, a Canadian writer, on aging, disability, COVID denial, and winnable access fights. 🇨🇦
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Crip News
A weekly roundup about disability arts and politics.
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Crutches and Spice
Imani Barbarin’s commentary on ableism, race and the politics of disablement.
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Disability Debrief
Explore disability around the world with an engaging newsletter and fast-growing library of disability news.
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Disability Thinking Weekday
Andrew Pulrang’s weekday commentary and links on disability writing, politics and popular culture.
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G Peters (MsSineNomine)
Gabrielle Peters on MAID, poverty, heat deaths, and who Canada is willing to let die. 🇨🇦
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Julia Métraux
A monthly round-up from a disabled freelance journalist, linking her recent reporting on disability, chronic illness and health.
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Not Dead Yet
The US disability rights group opposing assisted suicide and euthanasia as discrimination.
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The Disabled Feminist
Essays and interviews where the disability rights movement and feminism meet.
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Whatever What Is
Jessica Slice, author of Unfit Parent, on disabled parenting and fragile bodies and lives.
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Words I Wheel By
Making conversations about disability more accessible for everyone.
Evidence and Medicine
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Office for Science and Society
McGill University’s plain-language articles testing health claims, wellness trends and pseudoscience against the evidence. 🇨🇦
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Retraction Watch
Tracking retractions as a window into the scientific process
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Science-Based Medicine
Physicians and scientists examining the evidence behind medical claims and treatments.
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ScienceUpFirst
A Canadian initiative, co-founded by Timothy Caulfield, that counters health and science misinformation with short explainers. 🇨🇦
Accessibility and Neurodiversity
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Eric Bailey
Accessibility advocate, writer, and developer on how the web fails disabled people, and how to fix it.
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Sightless Scribbles
Robert Kingett, a blind writer, on accessibility, books, audio fiction, and life.
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Stimpunks
A neurodivergent- and disabled-led foundation writing on access, learning and community.
Podcasts
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Disability After Dark
Andrew Gurza’s long-running show on disability, sex, queerness, and the parts of disabled life people don’t talk about. 🇨🇦
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Disability Deep Dive
Interviews on accessibility, identity, discrimination, and rights from Disability Rights Florida.
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Disability Dialogues
Research and lived experience on disability, health equity and community well-being in Canada. 🇨🇦
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Docs With Disabilities
Physicians and trainees with disabilities on medicine, accommodation and access.
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Everything You Know About Disability Is Wrong
Two disabled hosts on real issues and conversations in disability communities.
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ListenABLE
Dylan Alcott and Angus O’Loughlin ask disabled guests the questions people think are off-limits.
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Our Voices: Conversations of Disability
Andrew Letchuk’s independent conversations with disabled people, scholars and activists in Ontario. 🇨🇦
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Reimagining DisAbled Futures
DAWN Canada on how gender, disability and economic inequality shape the lives of women and gender-diverse people. 🇨🇦