CMT’s Impact on Quality of Life Can Be Slight

This is interesting — some researchers looked at CMT1A impairment of hand strength, mobility, and general functioning for its impact on health-related quality of life (HRQoL).

Even though the measurable electrophysiological impact of CMT1A is high, the subjective level of experienced disability is pretty low, given the ways you can learn to compensate. So the study showed there wasn’t much impact on quality of life, even in terms of depression and fatigue:

The impact of CMT on well-being was assessed with the Medical Outcomes Study Short Form 36 (SF-36), Beck Depression Inventory, and the Fatigue Severity Scale.

I imagine the results might be different for someone who lost a particular skill or who really wanted to be doing something that CMT made more difficult if not impossible.

Dan Knauss

Dan Knauss

Hi, this is my CMT blog, and I wrote this article. You can read about me and my CMT story. Get in touch if you’d like; I’m always happy to answer questions about CMT and the medical system.

One response to “CMT’s Impact on Quality of Life Can Be Slight”

  1. […] Inácio writes about another study showing neuropathic pain is tied to social isolation and poor life satisfaction, as if that is any surprise. The conclusion that chronic pain needs greater attention and treatment […]

Leave a Reply

%d bloggers like this: