Category: Supports
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Asking for the ADA Suite
The hotel receptionist said there was a generator running near my room. In fact there was a giant truck with a generator and air conditioning system running 24/7 right outside the ADA room’s door to cool the whole building I’d be in. He said go check it out a few minutes and come back if it sucked. Of course it sucked.
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How long can you afford to hide it?
It’s too much damn trouble and humiliation to explain and ask for a little help or tolerance when hiding and lumping it is how you’ve learned to cope best. That’s not a good psychological place to be in, long-term, and I can see how it’s not going to serve well post-40s.
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Lord Grizzly
Here is one of the CMT-related poems I’ve written. There aren’t many. This was the first and is surely the longest. It’s in the long-line style of James Schuyler, who offered a really fun, liberating model a few 30/30s ago. The title nods to Frederick Manfred (AKA Feike Feikema) who wrote a historical-fictional account of the legendary mountain man Hugh Glass, loosely the basis for the film The Revenant.
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Disease, Depression, and Family Denial
CMT and other hideable/hidden diseases may often be denied by the people closest to you — a potentially devastating, psychologically defeating, and depressing, gaslit reality that is toxic and abusive.
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BILLYs
Thick sole, wide toe box, big ankle support, and the upper unzips to fold open for easy access and orthotic insertion. What’s not to like about BILLYs?
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